Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with dysgraphia. Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day.
Many sites provide valuable information, while others may have information that is unreliable or misleading. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies.
This book has been created for patients who have decided to make education and research an integral part of the treatment process. While this sourcebook covers dysgraphia, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that dysgraphia is often considered a synonym or a condition closely related to the following:.
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CTA works to improve the systems that Choice Magazine Listening CML provides bimonthly audio tapes of current magazine articles from over magazines free of charge to the blind, visually impaired, dyslexic, or physically handicapped The CJ Foundation is a national non-profit organization devoted to eliminating the tragedy of sudden unexpected infant and early childhood deaths, supporting grieving families, advancing medical research, The Cleft Palate Foundation CPF is a nonprofit organization dedicated to optimizing the quality of life for individuals affected by facial birth defects.
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CU is comprehensive It aims to establish their right to make full use of their vision through the necessary CURE is a grass roots organization with the mission of providing hope for children with intractable epilepsy by supporting research to find a cure. Volunteers are needed around the country to support and The Cushing's Support and Research Foundation was established in to provide information and support to Cushing's patients and their families. The Foundation was incorporated in the state of Massachusetts The mission of the Cystinosis Research Foundation is to support bench and clinical research that is focused on developing improved treatments and a cure for Cystinosis.
The Cystinosis Research Foundation The Dana Alliance for Brain Initiatives is a nonprofit organization of more than leading neuroscientists including nine Nobel laureates. The Dana Alliance is committed to advancing public awareness Dental Lifeline Network is a national nonprofit organization that provides access to dental care and education for older adults, people with disabilities, and medically fragile individuals who otherwise The Depression and Bipolar Support Alliance DBSA is a non-profit, patient-directed organization founded to provide personal support and direct services to patients with depression or manic depression DES Action is a national nonprofit organization formed to provide the public with information on the consequences of the use of diethylstilbestrol DES for women who have taken it and for children born The Disabled American Veterans DAV was chartered by Congress in as the official voice of the disabled veteran; it is not an agency of the Federal government, nor does it receive government funding A national nonprofit, c 3 , organization established in by disabled Vietnam veterans to serve the war injured.
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Individuals and organizations This is a nonprofit organization that grants wishes to adults age 18 years and over, its mission is to enhance the quality of life for individuals and families battling terminal illnesses. This organization The Drug Policy Alliance DPA is the nation's leading organization promoting alternatives to the drug war that are grounded in science, compassion, health and human rights. DPA is actively involved in The Dysautonomia Foundation is an international organization created in , to provide services for patients with Familial Dysautonomia, a Jewish genetic disorder.
We support a Treatment and Evaluation Its mission is to raise awareness of autonomic nervous system dysfunction and to promote dysautonomia education, Founded in and professionally certified as a c 3 non-profit organization in , the Dysautonomia Youth Network of America, Inc. DYNA is the first and only c 3 non-profit organization Easter Seals has been helping individuals with disabilities and special needs, and their families, live better lives for nearly 90 years. From child development centers to physical rehabilitation and job The Endometriosis Research Center ERC is a leading charitable organization founded in with the mission to elevate this painful illness to a priority public health platform.
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Unlike similar organizations, FACES: The National Craniofacial Association is a non-profit organization serving children and adults throughout the United States with severe craniofacial deformities resulting from birth defects, injuries, Families Anonymous FA was founded in as a mutual support group for families of people involved in drug abuse and related behavioral problems. Group meetings and discussions are modeled on the Twelve This is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans.
Families USA works at the national, state and FHI is a global health and development organization whose science-based programs bring lasting change to the world's most vulnerable people. Through a national network, Family Voices provides families tools to make Fanconi Anemia Research Fund, Inc. It is committed to providing education and support services to families around the world affected by FA.
The Fund sponsors Farm Animal Rights Movement FARM is a c 3 national nonprofit organization working to end the use of animals for food through public education and grassroots activism. FARM believes in the inherent The Federation for Children with Special Needs provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. The Federation Feeding America is the nation's leading domestic hunger-relief charity. FightSMA is an international c 3 organization committed to accelerating a cure for spinal muscular atrophy SMA , which kills more babies than any other genetic disease.
Since it was founded in With programs of research, advocacy The Food Research and Action Center FRAC is a national nonprofit organization working to improve public policies and public-private partnerships to eradicate hunger and undernutrition in the United States FORCE was founded on the principle that no one should have to face hereditary breast and ovarian cancer alone.
FORCE is a national non-profit dedicated to improving the lives of individuals and families The Foundation for Faces of Children FFC is a New England-based, non-profit organization, and a national source of information about craniofacial conditions. FFC is dedicated to improving the lives of FIRST is a nonprofit organization supported by public contributions and membership fees. FIRST raises funds to promote research on ichthyosis, This nonprofit organization offers information on progressive supranuclear palsy PSP and corticobasal degeneration CBD and support to persons with CBD, their families, and their caregivers.
Everyone has the right to live free of violence. Futures Without Violence, formerly Family Violence Prevention Fund, works to prevent and end violence against women and children around the world. Gam-Anon is a 12 Step fellowship of men and women who are husbands, wives, relatives or close friends of compulsive gamblers who have been affected by the gambling problem.
Gam-Anon's purpose is threefold Both are Genetic Alliance is a nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, The National Graves' Disease Foundation is the only national, non-profit, educational organization open exclusively to people with Graves' disease. This lay organization is also available to families, Guide Dogs for the Blind provides enhanced mobility to qualified individuals through partnership with dogs whose unique skills are developed and nurtured by dedicated volunteers and a professional staff.
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Guide Dogs of America is dedicated to its mission to provide guide dogs and instruction in their use, free of charge, to blind and visually impaired men and women from the United States and Canada so that Guiding Eyes is an internationally accredited, nonprofit guide dog school with a plus year legacy of providing the blind and visually impaired with superior Guiding Eyes dogs, training, and lifetime Four decades after its creation, the Guttmacher Institute continues to advance sexual and reproductive health and rights though an interrelated program of research, policy analysis and public education The Health On the Net Foundation HON promotes and guides the deployment of useful and reliable online health information, and its appropriate and efficient use.
Created in , HON is a non-profit, A non-profit organization whose mission is to inform parents and all those concerned with the welfare of children about preventable health and development problems caused by exposure to toxic substances Healthy Dining helps Americans make healthier choices at restaurants. Their Web site, HealthyDiningFinder. The Hearing Loss Association of America, founded in , seeks to educate people with hearing loss and the public about hearing loss and its management, and to promote the interests of people with hearing Managed by the George Washington University Graduate It provides comprehensive The Hepatitis B Foundation is a national non-profit organization dedicated to finding a cure and improving the lives of those affected by hepatitis B worldwide.
Our commitment includes funding focused The Home Safety Council HSC is the only national nonprofit organization solely dedicated to preventing home related injuries that result in nearly 20, deaths and 21 million medical visits on average Hope After Loss, formerly the Hygeia Foundation, is a community of women and men who grieve the loss of a pregnancy or infant. Through peer support, burial assistance, education, and awareness initiatives, Hospice Patients Alliance, Inc.
HPA was formed by hospice staff and other health care professionals to promote quality hospice services for all patients, whether enrolled in a licensed hospice, residing The mission of HAC is Founded in , the Hydrocephalus Association is a national non-profit organization. Our mission is to eliminate the challenges of hydrocephalus by stimulating innovative research and providing support, Incontinentia Pigmenti IP is a genetic disease of the skin, hair, teeth and central nervous system.
The condition was named because of the way the skin looks under the microscope. The Institute for Patient- and Family-Centered Care advances the understanding and practice of patient- and family-centered care.
In partnership with patients, families, and health care professionals, The Institute for Healthcare Improvement IHI is a not-for-profit organization leading the improvement of health care throughout the world. The IVAT is an important International resource, research and training center that includes all areas of violence, abuse and trauma. The Institute encompasses multiple centers, which focus on Family Violence The Insurance Institute for Highway Safety IIHS is an independent, nonprofit, scientific, and educational organization dedicated to reducing deaths, injuries, and property damage that result from crashes The International Association of Assistance Dog Partners IAADP is a cross disability group which educates and supports people with disabilities who have canine assistants do such things as guide people The International Association of Laryngectomees IAL , consists of local clubs worldwide that provide services and information to patients who have undergone laryngectomies and their families.
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The Jacobs Institute of Women's Health JIWH is a nonprofit organization working to improve health care for women through research, dialogue, and information dissemination. The mission of JIWH is to The couple founded the non-profit organization in hopes of sparing other families the devastating The Job Accommodation Network JAN is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. Working toward practical solutions that John Tracy Clinic provides worldwide parent-centered services without charge to young children with hearing loss, offering families hope, guidance, and encouragement.
Services include correspondence courses Established in , Joslin Diabetes Center is an internationally recognized institution that treats adults and children with diabetes, conducts diabetes research, educates patients and teaches professional Joubert Syndrome is a rare genetic disorder characterized by decreased muscle tone, difficulties with coordination, abnormal eye movements, abnormal breathing pattern and cognitive impairment.